Mai 4th 2018
SFB/TRR219 meets Minister of State Annette Widmann-Mauz in a workshop on
"Shared decision-making and networking with patients.
On Friday 4th of Mai 2018, Minister of State Annette Widmann-Mauz chaired a workshop on „Shared decision-making and networking with patients“ in the framework of the kick-off meeting of the SFB/TRR219 consortium funded by the German Research Foundation.
Mrs. Widmann-Mauz is also patroness of the “Self-help network” of the German patient organisation for patients with kidney disease (“Selbsthilfenetzwerk Bundesverband Niere e.V.”), an organization counting up to 18.000 members in Germany.
The workshop was organized under umbrella of the “Bundesverband Niere e.V.”, chaired by Peter Gilmer, and by Prof. Joachim Jankowski from the RWTH Aachen as speaker of the SFB/TRR219.
Discussed were topics of shared decision making, new synergies between research and the German patient organisation for patients with kidney disease as well as strategies to increase the involvement of patients from basic research to realization.
A publication in the patient journal “der Nierenpatient” accompanied this workshop to enhance awareness among patients with chronic kidney disease.